Showing posts with label Family. Show all posts
Showing posts with label Family. Show all posts

Saturday, October 16, 2010

Saturday, April 24, 2010

Video: Dark History

In 1942, in the midst of World War II, nearly 20,000 Japanese-Americans were taken to Santa Anita Park and held there as threats to American security.

~click~

ESPN televised a short segment about the Santa Anita Race Track, which was a temporary prison camp in 1942 that housed over 18,000 Japanese and Japanese Americans. Little has been told about these "Assembly Centers." They moved the horses out and moved us in. One day we were sleeping in our homes in Los Angeles, and the next night we are sleeping in horse stables.... without due process of law, without anything but 2 suitcases of clothing. We all showered in one large room where they washed down the horses after their races. The large room was divided in half by a plywood board, separating the men and women. We slept enclosed by barbed wire and guards in the guard towers. It was a frightening time for my parents, my brothers and sister and me, and thousands of famiilies like ours.

Tuesday, March 9, 2010

Where Are The Parents?

A question was asked by an official as to why there weren't more parents of Special Needs children involved in the local PTA and other issues. Sue Stuyvesant, mother to her special needs daughter gives a poignant reply:

Where are the parents?

They are on the phone to doctors and hospitals and fighting with insurance companies, wading through the red tape in order that their child's medical needs can be properly addressed. They are buried under a mountain of paperwork and medical bills, trying to make sense of a system that seems designed to confuse and intimidate all but the very savvy.

Where are the parents?

They are at home, diapering their 15 year old son, or trying to lift their 100 lb. daughter onto the toilet. They are spending an hour at each meal to feed a child who cannot chew, or laboriously and carefully feeding their child through a g-tube. They are administering medications, changing catheters and switching oxygen tanks.

Where are the parents?

They are sitting, bleary eyed and exhausted, in hospital emergency rooms, waiting for tests results to come back and wondering, "Is this the time when my child doesn't pull through?" They are sitting patiently in hospital rooms as their child recovers from yet another surgery to lengthen hamstrings or straighten backs or repair a faulty internal organ. They are waiting in long lines in county clinics because no insurance company will touch their child.

Where are the parents?

They are sleeping in shifts because their child won't sleep more than 2 or 3 hours a night, and must constantly be watched, lest he do himself, or another member of the family, harm. They are sitting at home with their child because family and friends are either too intimidated or too unwilling to help with child care and the state agencies that are designed to help are suffering cut backs of their own.

Where are the parents?

They are trying to spend time with their non-disabled children, as they try to make up for the extra time and effort that is critical to keeping their disabled child alive. They are struggling to keep a marriage together, because adversity does not always bring you closer. They are working 2 and sometime 3 jobs in order to keep up with the extra expenses. And sometimes they are a single parent struggling to do it all by themselves.

Where are the parents?

They are trying to survive in a society that pays lip service to helping those in need, as long as it doesn't cost them anything. They are trying to patch their broken dreams together so that they might have some sort of normal life for their children and their families.
They are busy, trying to survive.


That's about it in a nutshell for me as well.

Friday, January 22, 2010

David Horowitz: Remembering Sarah

Best seller author and conservative David Horowitz wrote a must read reflection on his book,"A Cracking of the Heart." David Horowitz examines a spiritual journey with his daughter, Sarah. Born in 1964 with Turner syndrome, Sarah stood less than 5 feet tall, had poor hips and a weak heart, which took her life in 2008. It's a story of the relationship of a father's love for his daughter.

Friday, March 14, 2008:

This is a sad time for us, but it is also a time to reflect on a remarkable person who led an extraordinary life. I want to thank everyone who came here to pay tribute to my sweet child Sarah; especially those whom I do not know who obviously love her and who came to remember her with her family. The fact that we are all here together, albeit united in grief, is something that would have made Sarah happy.

I want to first take a moment to thank Elissa, whose passionate and lifelong devotion to her children (and now to her grandchildren) has inspired in them a love for family and others that is as manifest in every one of their lives, as it was in Sarah’s. For me the most painful and necessary and important lesson of Sarah’s leaving is that we must all learn to appreciate each other more. And we must all love each other more. This is what Sarah would want from us.

I never knew a kinder person with a bigger heart than my sweet Sarah. All of us begin life with streaks of selfishness and sometimes meanness. Sarah came into this world without such a gene in her body. Frustrations she had; anger yes. But I never saw her be unkind to anyone; or to any living creature. When she was in the fourth grade to take just a characteristic example, her class had a rabbit named Wumpy who needed to be adopted when the term came to an end. No one in the class stepped forward to take Wumpy. And so Sarah brought Wumpy home. It was so Sarah to do.

...All her life Sarah faced great odds, and not only because of her small stature, which caused many to underestimate her, and forced her to have to exert herself to be taken seriously. From the day she was born she was beset with medical problems which hampered her ability to cope. She had a kinked aorta which doctors feared would shorten her life. And possibly did. She was hard of hearing, eventually almost to the point of deafness in a way that could not be corrected by technological aids. In her first years she had difficulty even forming words and then putting them together in sentences. Yet despite these challenges, she became a gifted writer of poetry and prose, with a stunning ear for the language. After she was gone an interview with her was published on Next Book, an Internet website which features writers such as Saul Bellow and Philip Roth. She was pleased when I told her I was jealous, which I was. In addition to mastering her own language in a way few people do, she made herself learn Hebrew in order to pursue her faith, which she would have referred to as her spiritual path. She was a fount of knowledge about Judaism and gave Sabbath lectures on sacred texts.

She was near-sighted and had a poor sense of direction and was never able to drive. She could walk only with difficulty and pain, which grew worse as she grew older. Yet every week and sometimes more than once a week she walked two miles to shul and back, in fair weather and foul.

Many people would have been depressed and then overwhelmed by the difficulties Sarah faced in the ordinary business of her life; the medical procedures she was put through, which often did not work; the impaired mobility which constricted her horizon and made every common task from going to the grocery store for food to taking the bus downtown to service her computer a burden; the near-sightedness which made her favorite vocations, reading and writing, even more arduous than they normally are; the single life which she did not want; the limited financial resources, which made her count pennies; the tiny apartment, which could barely hold her books and belongings. But Sarah was not overwhelmed by these frustrations and disappointmentss; she packed more interests and more travels, more experiences and more learning, more friends, and more projects, more people that she touched in her brief lifetime than most people do in earthly journeys that are twice as long. And she left a greater vacancy behind....
There's more...

I realize that David Horowitz' book has been out for quite some time now. But this is the first I've heard of it this morning on the Laura Ingraham Radio Show as she was promoting the March for Life rally today in Washington.

His story is something that I can so relate to. I have a daughter who has needs that are very special. I live with the fact that my daughter's life can be taken away from me in the blink of an eye so I do understand how important the value of our lives are and how we must cherish and respect it, as it is so short.

Wednesday, December 24, 2008

The Best Christmas Gift Ever...

...For 3-year old Kensley Penney who asked Santa for two things only. A truck and her daddy. What a surprise it was to see her daddy who is home for 18 days from Afghanistan.


video

Indeed......